Your support will change lives.
There are currently no treatments or cures for LGMD2D/R3. And patients are in critical need. Every breakthrough begins with support.
All donations made to the foundation will be used to help raise LGMD awareness, advocate for our community, fund promising therapeutic research strategies, and maintain the international LGMD2D patient registry.
Double your impact by submitting your donation for your company match, when available.
We accept grants and donations from Fidelity Charitable, Schwab Charitable, Vanguard Charitable, and all major DAF sponsors.
Your partnership fuels research, strengthens advocacy, and brings hope to families living with LGMD2D around the world. Together, we are turning urgency into action—and action into impact.
Donate below or email info@lgmd2d.org for more information.
Shop LGMD2D Foundation
Help Us Raise Awareness with Merch!
We are excited to have launched our new LGMD2D Foundation merchandise store. You can help us raise awareness of LGMD2D & support our advocacy and treatment initiatives just by purchasing our merch. And this is only the beginning! Be sure to check back often for new styles and designs.
Join Our Community Fundraising Efforts
Helping our LGMD2D community, together.
We have several fundraising initiatives planned for 2026 to raise money in three core areas: awareness, advocacy and research. The more we raise awareness and advocate for LGMD, the more treatment research will expand. LGMD2D patients desperately need treatment options to help slow and stop the progression of this severe disease. Every dollar counts!
2025 Travelers Championship - Birdies for Charity
We were thrilled to be a part of the Travelers Championship Birdies for Charity again in 2025. Thanks to your generous donations last year, our foundation was able to raise almost $3,000 to help LGMD2D patient advocacy, awareness, and research.
3rd Hope in Motion: LGMD2D Awareness 5K
We were excited to hold the 3rd virtual 5K event, Hope in Motion: LGMD2D Awareness 5K. In 2025, our event will be from Friday, September 25, to Wednesday, September 30th, to support LGMD2D / R3 patients. Whether you walked, ran, or rolled during the LGMD Awareness Day event, every mile mattered.
Thank you to everyone who joined us for our 2025 event. Because of you, we had over 130+ registrants and raised over $21,000 for LGMD2D.
Fore the Cure: LGMD2D Golf Tournament
We were thrilled to host our inaugural golf tournament at Stanley Golf Course in New Britain, Connecticut, in October 2025. Thanks to the incredible support of our 26 sponsors, 130+ attendees (60+ golfers), and volunteers, the event was an outstanding success — raising over $32,000 and awareness for the LGMD2D community.
Building on this momentum, we are excited to announce two golf tournaments in 2026:
May 16, 2026 — Plymouth, Massachusetts
September 26, 2026 — New Britain, Connecticut
These events will bring together families, community leaders, corporate partners, and advocates to drive awareness, fund research, and accelerate progress toward treatments and a cure. We invite you to join us on the course and be part of the impact.
Support LGMD2D/R3 Warriors
There are currently no approved treatments or a cure for LGMD2D/R3. The incredible warriors fighting this disease around the world need your support. Please consider making a donation—no dollar is too small, and every dollar goes directly toward raising awareness, advocating for families, and driving the development of life-changing treatments. Join us in this critical mission. Your support truly makes a difference.