Driving hope globally for LGMD2D/R3 patients and families.
Committed to advancing our mission through awareness, advocacy, and research.
Founded in September 2013, the LGMD2D Foundation is a registered 501(c)(3) nonprofit built by families, for families affected by Limb-Girdle Muscular Dystrophy, Type 2D/R3. Our mission is simple and urgent: to accelerate the development of treatments and a cure for LGMD2D/R3 by funding critical research, advancing clinical trials, and leveraging our global patient registry to drive progress.
LGMD2D is a rare, progressive neuromuscular disease that leads to increasing muscle weakness, loss of mobility, and loss of independence. Today, there are no FDA-approved treatments. Families cannot afford to wait—and neither can we.
Through a powerful combination of awareness, advocacy, and research, we are driving progress forward. The Foundation:
- Maintains the only international patient registry for LGMD2D/R3.
- Funds critical research and provides direct financial support to accelerate clinical studies and trials.
- Actively monitors clinical trial development and therapeutic pipelines.
- Builds scientific collaboration and strategic partnerships.
- Amplifies the patient voice through national and international advocacy, including participation in FDA scientific workshops and global LGMD conferences.
Support LGMD2D/R3 Warriors
There are currently no approved treatments or a cure for LGMD2D/R3. The incredible warriors fighting this disease around the world need your support. Please consider making a donation—no dollar is too small, and every dollar goes directly toward raising awareness, advocating for families, and driving the development of life-changing treatments. Join us in this critical mission. Your support truly makes a difference.