International LGMD2D Patient Registry
About the LGMD2D Patient Registry
The International LGMD2D Patient Registry is free to join and is currently the only database for patients afflicted with LGMD2D/R3.
The purpose of this patient registry is to assist in the development of treatments for LGMD2D. This registry will:
- Help researchers identify patients who qualify for future clinical studies and trials.
- Allow researchers to study disease progression.
- Raise awareness of LGMD2D/R3.
- Help patients find suitable clinical and research experts to assist them in managing their disease.
We highly encourage anyone with LGMD2D to join the patient registry today and ask that you share this link with anyone you know who has been diagnosed with this rare disease. Once registered, you will receive LGMD2D email updates when available, including events, latest research, and clinical trial opportunities.
Please note that your privacy is very important to us. No personally identifiable information will be shared with researchers without prior consent. If you have any questions about the registry, please email us at info@lgmd2d.org.
Help us find a cure.
Your generous donation will help support research to find effective treatments or a cure for LGMD2D/R3.
Help us help LGMD2D patients!
Join us this fall for two fantastic events to support patients with LGMD2D/R3. It’s a great chance to come together, have fun, and make a real difference! All the proceeds will go toward raising LGMD2D awareness, advocating for those affected, and developing new treatments. Be part of this important cause with us!