
Join us throughout the month of September for our 3rd Annual Hope in Motion: LGMD2D Awareness Virtual 5K, a global movement of hope, community, and action for families affected by Limb-Girdle Muscular Dystrophy, Type 2D/R3 (LGMD2D).
This year, we are thrilled to partner with the LGMD Awareness Foundation for a special collaborative event, coming together with the broader LGMD community to raise awareness, inspire hope, and accelerate progress toward treatments.
Whether you choose to walk, run, or roll, every mile completed and every dollar raised helps move research forward for individuals and families living with LGMD2D/R3.
One of the best things about Hope in Motion is that you can participate wherever you are.
✔ Walk your neighborhood
✔ Run your favorite trail
✔ Roll through your local park
✔ Gather friends, family, coworkers, or classmates
✔ Participate on your own schedule
No matter where you live, you'll be joining a community united by one goal: bringing treatments to patients who urgently need them.
LGMD2D/R3 is a rare, progressive, muscle-wasting disease caused by mutations in the alpha-sarcoglycan (SGCA) gene. This disease leads to increasing muscle weakness and loss of function, impacting children and adults around the world.
Today, there are no approved treatments for LGMD2D.
The good news is that promising research is advancing. Clinical programs, gene therapy approaches, and precision medicine strategies are creating real opportunities for treatment development. But progress depends on continued funding and community support. That's why Hope in Motion exists.
Create a team & multiply your impact.
Invite your family, friends, coworkers, school, church, or community group to join you.
Whether you're honoring a loved one, supporting a friend, or advocating for the rare disease community, creating a team is a meaningful way to spread awareness and amplify fundraising efforts.
100% of event proceeds will support research focused on developing treatments for LGMD2D/R3.
Every registration, donation, and shared story helps us move one step closer to changing lives. Together, we can make a powerful difference.

Join us. Move with purpose. Raise awareness. Fund research. Create hope.

There are currently no approved treatments or a cure for LGMD2D/R3. The incredible warriors fighting this disease around the world need your support. Please consider making a donation—no dollar is too small, and every dollar goes directly toward raising awareness, advocating for families, and driving the development of life-changing treatments. Join us in this critical mission. Your support truly makes a difference.
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