There are currently no treatments or cures for LGMD2D/R3. And patients are in critical need.
All donations made to the foundation will be used to help raise LGMD awareness, advocate for our community, fund promising therapeutic research strategies, and maintain the international LGMD2D patient registry.
You can help make a difference in the lives of LGMD2D/R3 patients with your donation today!
We are excited to have launched our new LGMD2D Foundation merchandise store. You can help us raise awareness of LGMD2D & support our advocacy and treatment initiatives just by purchasing our merch. And this is only the beginning! Be sure to check back often for new styles and designs.
We have several fundraising initiatives planned for 2024 to raise money in three core areas: awareness, advocacy and research. The more we raise awareness and advocate for LGMD, the more treatment research will expand. LGMD2D patients desperately need treatment options to help slow and stop the progression of this severe disease. Every dollar counts!
Thank you to everyone who joined us for our first annual virtual 5K event, Hope in Motion: LGMD2D Awareness 5K. Whether you walked, ran or rolled during the LGMD Awareness Day weekend, every mile mattered. Because of you, we had over 110+ registrants and raised almost $8,000 for LGMD2D.
The International LGMD2D Patient Registry is free to join and is the only database for patients afflicted with LGMD2D/R3.
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