Donate today!
There are currently no treatments or cures for LGMD2D/R3. And patients are in critical need.
All donations made to the foundation will be used to help raise LGMD awareness, advocate for our community, fund promising therapeutic research strategies, and maintain the international LGMD2D patient registry.
You can help make a difference in the lives of LGMD2D/R3 patients with your donation today!
LGMD2D Foundation Merchandise
Help raise awareness & donate through our new merchandise store!
We are excited to have launched our new LGMD2D Foundation merchandise store. You can help us raise awareness of LGMD2D & support our advocacy and treatment initiatives just by purchasing our merch. And this is only the beginning! Be sure to check back often for new styles and designs.
Fundraising Initiatives
Helping our LGMD2D community, together.
We have several fundraising initiatives planned for 2024 to raise money in three core areas: awareness, advocacy and research. The more we raise awareness and advocate for LGMD, the more treatment research will expand. LGMD2D patients desperately need treatment options to help slow and stop the progression of this severe disease. Every dollar counts!
2025 Travelers Championship - Birdies for Charity
We were thrilled to be a part of the Travelers Championship Birdies for Charity again in 2025. Thanks to your generous donations last year, our foundation was able to raise almost $3,000 to help LGMD2D patient advocacy, awareness, and research.
2nd Hope in Motion: LGMD2D Awareness 5K
We are excited to be launching the 2nd virtual 5K event, Hope in Motion: LGMD2D Awareness 5K. This year, join us from Friday, September 26, to Tuesday, September 30th, to support our LGMD2D patients. Whether you walked, ran, or rolled during the LGMD Awareness Day weekend, every mile mattered. Thank you to everyone who joined us for our 2024 event. Because of you, we had over 110+ registrants and raised almost $8,000 for LGMD2D.
Fore the Cure: Golf Tournament for LGMD2D
We are excited to hold our first golf tournament event at Stanley Golf Course in New Britain, Connecticut, on October 11, 2025. Join us for an energizing day of golf, then relax afterwards with a cocktail and dinner reception.
More details to come soon!
Join the International LGMD2D Patient Registry
The International LGMD2D Patient Registry is free to join and is the only database for patients afflicted with LGMD2D/R3.