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LGMD2D Foundation
  • Home
  • About Us
  • Patient Resources
  • Trials & Research
  • Donate
  • Contact Us

LGMD2D Patient Registry

About the registry

The International LGMD2D Patient Registry is free to join and is currently the only database for patients afflicted with LGMD2D.  


The purpose of this patient registry is to help assist in the development of treatments for LGMD2D. This registry will: 

  • Help researchers identify patients who quality for future clinical studies and trials 
  • Allow researchers to study disease progression 
  • Raise awareness of LGMD2D 
  • Assist patients in finding appropriate clinical and research experts to help them manage their disease 


We highly encourage anyone with LGMD2D to join the patient registry today and ask that you share this link with anyone you know who has been diagnosed with this rare disease.  Once registered, you will receive LGMD2D email updates when available including events, latest research and clinical trial opportunities. 


Please note that your privacy is very important to us. No personally identifiable information will be shared with researchers without prior consent. If you have any questions about the registry, please email us at info@lgmd2d.org.

Join Our Registry

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Upcoming LGMD Events

September 23, 2022

EL-PFDD Meeting

Event Details

September 23, 2022

EL-PFDD Meeting

The externally-led patient-focused drug development (EL-PFDD) meeting is an important, monumental effort will give individuals diagnosed wit...

Event Details

LGMD Magazine

LGMD News - Spring 2022 issue (Volume 2, Issue 2)

The Speak Foundation's magazine created just for the LGMD community. Subscribing is free and confidential.

Read This Issue & Subscribe

Help us find a cure.

Your generous donation will help support research to find effective treatments or a cure for LGMD2D.

Pay with PayPal or a debit/credit card

LGMD2D Foundation

Copyright © 2022 LGMD2D Foundation - All Rights Reserved. LGMD2D Foundation is a 501(c)(3), Est. 2013.

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